Sunday, September 7, 2008 - 9:55AM EST

Questions to Ask Your Doctor about Hereditary Hemochromatosis

  • What types of testing will be required to confirm if my iron overload is due to hereditary hemochromatosis or another condition?
  • What is the likelihood that my children will develop hereditary hemochromatosis if I've been diagnosed with this disorder?
  • Which of my family members are at-risk for developing hereditary hemochromatosis and do you recommend genetic testing to determine if they carry the HFE mutations?
  • Is there any clinical evidence that any of my vital organs have been damaged as a result of my hemochromatosis?
  • Will I need to undergo a liver biopsy to determine if I may have developed cirrhosis of the liver?
  • How soon after starting therapeutic phlebotomy should I start to see an improvement in my symptoms?
  • Would iron chelation therapy be an option to therapeutic phlebotomy for the treatment of my hereditary hemochromatosis?
  • What types of modifications should I make in my diet to help control my hemochromatosis?
  • Is treatment for my hereditary hemochromatosis covered by my health insurance policy?