Resources and Support Groups for Myelodysplastic Syndromes
American Institute for Cancer Research: Nutrition Hotline
1759 R Street NW Washington, DC 20009
800.843.8114 202.328.7744
Aplastic Anaemia Trust/Myelodysplastic Syndrome Support Group
16 Sidney Road; Borstal, Rochester; Kent ME1 3HF UNITED KINGDOM
0870 487 0099
Bryony Dettmar, Coordinator
Aplastic Anemia & MDS International Foundation
POB 613; Annapolis, MD 21404
800.747.2820 410.867.0242; 410.867.0240 (fax)
Aplastic Anemia & Myelodysplasia Association of Canada
11181 Yonge Street Suite 321 ; Richmond Hill, Ontario; L4S 1L2 CANADA
888.840.0039 905.780.0698
Cancer Information Service; National Cancer Institue
6116 Executive Boulevard; Room 3036A; Bethesda, MD 20892
800.422.6237 800.332.8615 (TTY)
Candlelighters Childhood Cancer Foundation
POB 498; Kensington, MD 20895
800.366.2223 301.962.3520; 301.962.3521 (fax)
Center for Internation Bone and Marrow Transplant Research
Medical College of Wisconsin; 8701 Watertown Plank Road P.O. Box 26509; Milwaukee, WI 53226
414.456.8325; 414.456.6530 (fax)
Childhood Leukemia Foundation
807 Mantoloking Road; Brick, NJ 08723
888.253.7109; 732.840.5818 (fax)
Children's Blood Foundation
525 East 68th Street; Payson 6; New York, NY 10021
212.297.4336 212.297.4340 (fax)
Cure Search; Children's Oncology Group
4600 East-West Highway; #600; Bethesda, MD 20814.3457
800.458.6223 240.235.2200; 301.718.0047 (fax)
Fred Hutchinson Cancer Research Center
1100 Fairview Avenue North; PO Box 19024; Seattle, WA 98109
800.804.8824 206.288.1024; 206.288.1025 (fax)
Leukemia and Lymphoma Society
1311 Mamaroneck Avenue; White Plains, NY 10605
800.955.4572 914.949.5213; 914.949.6691 (fax)
Leukemia Research Foundation/Living with Leukemia
820 Davis Street; Suite 420; Evanston, IL 60201
847.424.0600; 847.424.0606 (fax)
M.D. Anderson Cancer Center
1515 Holcombe Blvd.; Houston, TX 77030
800.392.1611 713.792.3245; 713.792.6161 (f)
Memorial Sloan Kettering Cancer Center
1275 York Avenue; New York, NY 10021
800.525.2225 212.639.2000
Myelodysplastic Syndromes Foundation
POB 353; Crosswicks, NJ 08515
800.637.0839 609.298.6746; 609.298.0590 (fax)
National Bone Marrow Transplant Link
20411 West Twelve Mile Road; Suite 108; Southfield, MI 48076
248.358.1886; 800.546.5268
National Childrens Leukemia Foundation
7316 Avenue U; Brookyn, NY 11234
718.251.1222 800.448.3467; 718.251.1444 (fax)
National Marrow Donor Program
3001 Broadway St. NE; Suite 500; Minneapolis, MN 55413
800.627.7692 612.627.5800; 612.627.5877 (fax)
The Cancer Project (Healthy Diet and Cancer)
5100 Wisconsin Avenue Suite 400 Washington, DC 20016
202.244.5038
Women's Cancer Resource Center
5741 Telegraph Avenue; Oakland, CA 94609
888.421.7900 510.420.7900; 510.601.4045 (fax)
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