Quality of Life and Psychosocial Considerations in Polycystic Kidney Disease

Polycystic kidney disease (PKD) may cause a significant amount of uncertainty and suffering. Quality of life, as well as duration of life, can often be affected.

Since children of persons with ADPKD have a 50% chance of inheriting the disease, patients may benefit from genetic counseling if they are considering starting a family or having additional children.

Estimates regarding the quality of life of patients following successful renal transplantation for kidney failure vary. Some researchers report up to 88% of patients being very satisfied with their general health and up to 75% being satisfied with their quality of life.

Depression is not uncommon for persons with PKD as a result of the chronic nature of the illness and the pain associated with the disease. It is important to discuss any symptoms of depression with your health care provider so that it may be treated as a separate and significant condition.

Education and support are available from a variety of sources. Understanding the disease and its treatments is very important in helping persons with polycystic kidney disease and their loved ones to make informed decisions about their care and cope with the disease on a daily basis.