Monday, September 8, 2008 - 9:19AM EST

Questions to Ask Your Health Care Provider about Polycystic Kidney Disease

  • Are all of my symptoms consistent with a diagnosis of polycystic kidney disease (PKD)?
  • Could my symptoms result from another illness?
  • Which type of PKD do I have and how will my treatment proceed?
  • Do I treat pain when it is still mild or should I wait until it is severe?
  • How safe are the medications? What is the best way to take them?
  • How will the progression of the disease and its effects on the kidneys be monitored?
  • How will the decision regarding the necessity of dialysis be made?
  • How will my life change after initiation of dialysis?
  • At what point will kidney transplantation be considered as an option?
  • How will my daily life change after a renal transplant?
  • How often do I need follow-up visits?
  • What insurance and financial resources are available?
  • What resources are available for education and support?
  • Are there any clinical trials in which I might be interested in participating?