MedifocusHealth

Reflex sympathetic dystrophy (RSD) can be a lifelong condition that can have a significant impact not only on the patient but on family and friends as well. The condition may affect many aspects of the patient's life in varying degrees including:

• Activities of daily living
• Employment
• Social life
• Personal life

Some of the adjustments of daily life that the patient may have to make include:

• Frequent leave of absence from work or possibly early retirement due to inability or difficulty performing work-related tasks
• Giving up or modifying leisure activities such as hiking, kayaking, traveling.
• Modification of exercise regimens
• Foregoing routine activities such as driving or shopping
• Participating in family activities and outings

A study from the Netherlands evaluating quality of life issues among patients with chronic RSD reported that the greatest interruption in daily life was related to:

• Chores around the house
• Jobs (employment)
• Holidays
• Hobbies
• Social life
• Sex life

In this study, patients with chronic RSD of the upper extremity reported that chronic pain, difficulty sleeping, and lack of energy were the most distressing aspects of the condition that impacted on their quality of life. Mobility was not a significant issue for these patients. The greatest disruptions in daily life were related to:

• Hobbies
• Household chores
• Self care
• Employment

The overall quality of life scores for patients with chronic RSD were lower than for patients with diabetics, people with migraine headache, and people with chronic lung disease, all of who traditionally report significant disruption in their quality of life.

Reflex sympathetic dystrophy may create a financial strain on the patient and their family due to reduced income, unemployment, and additional medical expenses required for various treatments. It may be prudent for the patient and their family to meet with a financial planner and/or an insurance agent to devise a budget so that eventual and unexpected expenses will be accounted for. This may reduce the general stress level for the patient and their loved ones.

Friends and family may find it beneficial to map out a plan of action with the patient's participation so that a daily routine is established. This reduces stress levels and minimizes unexpected changes in plans. Responsibilities that may need to be addressed include:

• Planning meals
• Cooking
• Cleaning
• Laundry
• Shopping
• Car pools
• Pet care
• Leisure activities